Since you first heard the words "end-stage renal disease" (ESRD) and "kidney failure," you have probably been wondering what happens now...this is a typical reaction. Everyone facing kidney disease has concerns and questions about the future. The future may seem uncertain and dreams and plans changed. But there is help available.
The American Association of Kidney Patients (AAKP) is here to be your guide. It is our mission to help fellow kidney patients and their families deal with the physical, emotional and social impacts of kidney disease. We want to help you achieve the best possible quality of health and quality of life.
As ESRD patients, we have already taken the journey you are about to take. We think the knowledge and experience we have gained along the way can be of great value to you and your family. This is why we developed the AAKP Patient Plan©.
The AAKP Patient Plan© can be thought of as a roadmap or travel guide. But it is also much more. The series of books and newsletters will tell you what to expect, what your needs will be, who will help you, what you need to know and how to make your journey a success.
During each of these phases you can keep control of your life by staying active and learning as much as you can about kidney disease and treatment. Being told you have a chronic illness changes your life. As fellow patients, we know that learning what to expect and what your options are will help you to be less afraid and more hopeful. The more you know, the better able you are to make choices that are best for you and your family.
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